Hey! I realize that I have been so horrible at updating our blog the past 6 months!! But that is about to change!! From now on it is my JOB to do this, also my therapy!
On Saturday, March 13 we took Chase into the ER at Primary Childrens Hospital because his back was hurting and it was making him walk a little funny. (9 days before this we had been up there because he couldn't move his neck & after a million tests, they sent us home)... We got to the ER about noon and since his blood work was fine a week earlier and his CT Scans were good I was convinced that it was nothing serious and that he had just fallen and hurt his back, he's a boy he gets hurt all the time. So they took X Rays of his back and hips, all were normal... Good - but what is the problem? So at 4:30 they finally put in an IV and took blood and put him on fluids. An hour later they came and told us that they were admitting us to Oncology because he had Leukemia..... SHOCK!! I couldn't believe it! My baby boy has Cancer! I wanted to throw up and break things and crawl in a whole and scream and cry... Nothing can prepare you for this, every parents worst nightmare! So in 9 days it presented itself... On the 4th his blood work was fine, a little anemic but fine and then on the 13th his blood work showed no question that he has Leukemia(Acute Lymphoblastic Leukemia or ALL). So at Noon on Sunday, the 14th (just 24 hours after went to the ER to have them look at his hurt back) he went in for Surgery to have a PORT put in his chest (a permanent IV so that he doesn't need to get IV's in his hand all the time), they took Bone Marrow from his hip and he had an LP, a spinal tap to check his spinal fluid and then a shot of Chemo in his spine to go to his brain. Then on Monday he had a Chemo that is called Vinchristine that goes in his Port, he will get this every Monday for the next month. Also on Monday he started oral chemo twice a day which is basically very strong steroids, the side effects are "Roid Rage". Then yesterday he had a LAP shot in this thy muscle that was HUGE and BRUTAL!!! He is so brave! My LITTLE BIG HERO!! It's all happening so fast, no obvious warning but also no time to dwell on it, which is a blessing! We spent the week at the hospital and got to come home yesterday. We are very lucky that his treatment will be done as outpatient! We only have to go to Clinic on Mondays for the chemo in his PORT. Also on Mondays he will continue to get spinal taps with more chemo to the brain and bone marrow taken from his hip. If he needs fluids or more blood transfusions we will be able to do it there also. So barring any weird side effect or sicknesses we will be able to be at home! The bad news is that his treatment will take at least 3 years so this is our new "normal". The good news or the GREAT news is that ALL has a 95% cure rate! So he WILL be absolutely fine and cancer free but it will just take a while! There is no doubt in my mind that he will pull through this, he is so strong and so brave! Of all of my kids he is the most positive and go with the flow, I know he can do this! Besides it is really our only option! His hair will start falling out in the next few weeks so next Friday we are having a "Head Shaving Party", anyone that would like to join us is welcome to! My cousin Alysia does hair and she is bringing her clippers and clipping anyone that wants to help support Chaser! We are charging $5 a person and donating it to children's cancer research, we figure it is a fast, fun & easy way to support the cure! There are so many places my mind has taken me this week that I feel like I am a different person than I was 6 days ago. I've learned so much that I never wanted to know, ignorance was sooooo bliss for me. I follow so many blogs about sick kids and wonder where these parents find the strengh and how they do it everyday. And now I know that you don't even have to look for the strength, as Mommy's and Daddy's it is in our DNA... I wouldn't trade Chase for the world so I know that whatever kind of Hell we are facing I am ready for it, bring it on! We will do this and be that much stronger after words!!! There is no doubt in my mind that the pleasure of being his Mommy will be worth all the PAIN!!!! Pray for my little man and ALL of the kids that I met this week that are in the same boat or worse!! God Bless Everyone!
December 1st- December 31st
9 years ago
9 Shout Outs!:
Jamie,
Your strength and positive additude AMAZE me! Remember only 2 or 3 weeks ago when I told you: "Your enthusiaum is contagious?" Well, I still believe that NOW more than ever! I'm so glad that we got to spend time together that day and night, to get to know each other, and I am here for anything you need. Chase is extremely blesses to have the family and support he does, and I just wish him the BEST! I know he is strong! Loads of love,
Kaydee
Jamie I couldn't agree more with your friend Kaydee. Your positive attitude is what draws the world to you! I have no doubt that Chase will get through this, and that like you said you and your family will indeed be stronger for it. We are all here for all of you, rooting the little guy on! And I have no doubt that Colton is your first born for a reason...helping all of you through this being one of them. You are all in my heart and prayers CONSTANTLY (the boys have been praying for y'all too). Thank you for sharing your story with everyone. This will be an incredible thing to print and keep forever for all of you. Anyway, I could go on and on, but the Lord blesses us in such mysterious ways...and it's so interesting when we get to see his hand in action. I'm so sorry Chase has go to through such painful treatments. May God give him, you, Shawn, Colton, Cimberly and your whole extended family the strength that all of you need to get through this. And may he place people in your paths along the way to carry you when you need it. I love you Jamie. You have blessed my life for good and I am SO proud to call all of you my friends. :-)
Jamie, I am he single most lucky peson in the world, because I have been able to call you my best friend for 28 years now.... Your attitude is truley contagious and I know with out a doubt that you will all get through this with flying colors!!! You are an amazing person for so many reasons and you have such amazing people behind you!!! I am so sorry you have to go through all this, but you do have an amazing attitude!! We love you so much, Ang, Dave and Ava :)
Jamie, I know that you and Shawn will continue to find the strength in each other. There will be harder times than you can imagine, but there will be lots of laughter and memories that will stand the test of time. The memories of the hard times fade, but the lessons learned and laughter and sweet memories live on.
It's true what the Dr's said, this will become what you do and who you are. We humans have a wonderful way of adapting. And this too shall pass!
We love you guys and will keep you in our prayers.
Jamie, I feel so bad that I had no idea until I got your blog message this morning! You are truely amazing! I agree with all of your friends comments written above. That is really a scary thing to have happened, and we are here for you! We will have you constantly in our prayers and thoughts! If you need anything that I can help with I would love to do it! I'm glad that you are so positive it will help in your challenges you have ahead of you!
Once again I'm here for you and wishing you all the luck in the world for sweet Chase!
Maim...I am so in the same boat as you were...how do parents find the strenght to deal? They are our little angels and we would go to the end of the earth and back for them. That is how we deal with lifes tragic moments. You are amazing Maim! Love you and your little family:) Praying for your little man, kids alike, and the mommies and daddies that stay strong for them. Hang in there cute girl. I am here.
I saw your comment on Rachels blog so I took a peek at your blog...my heart just sank for you. I admire your strength to stay so upbeat and strong. I will keep you in my prayers!
Wow. I can't even imagine how the last few weeks/days have been for you and your family. You speak about this event with such conviction and positivity and I just know that Chase will pull through all of this with you by his side. You hang in there and please continue to keep us all updated as too all of your updates!!!
Love you!!!!!!!!
We just wanted you to know we are thinking about you guys and that your sweet family is in our prayers! I hope everything went well at clinic yesterday... that first time can be brutal. I can already tell you guys are an amazing family and I am excited to get to know you a little better! You guys can do this! Good luck this week...
Heidi
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